End stage of an illness

There is no easy way to say this, but it is sad to announce that I am in a final stage of an illness. I will try to survive; odds are not that bad, but it won’t be easy.

(Bu yazının kötü bir çevirisini burada bulabilirsiniz. You can find this piece’s badly translated version here)

For the last 5 years I have been trying to take care of my kidneys, ever since my creatinine levels were measured to be high during my osteomyelitis treatment. After a while I cut all drugs that I use which contain nephrotoxic agents and leaned solely on diet to manage my diabetes. It was and still is manageable.

For years forward now I am at hospital receiving my first haemodialysis through a catheter on my neck before my surgically joined vein in my left forearm gains some strength and girth to allow dialysis.

Prognosis

Many dialysis patients die within 5 years. 10-year survival rate is extremely low. This is severe because most end-stage kidney disease patients begin dialysis at their 65. Younger patients generally have a decade less than their original life expectancy at birth, if no comorbid diseases strike in the process. Kidney transplant solves many issues and nearly fixes the survival time problem.

Problem with organ donations

In Turkey, many people are worth more than they are dead than they are alive. You coffin can be used to give speeches while covered in flags, you can be made propaganda material, or your family can decide what to be done with your dead body, even against your wishes. This valuation also causes some social problems like “burying the body as a whole”, I am not sure what kind of sick purpose that serves.

Due to this problem, four out of five kidney transplants are from living donors. Modern countries have this ratio in reverse. The problem with the living donors is the problem of possibly creating two patients while trying to fix one. Donor should be in near-perfect health. High blood pressure? Strike out. Potential diabetes? No way. Chronic diseases? Not a chance…

The social aspect is another problem: You are not asking someone for a car. You are asking them for an organ, an actual part of them which may heal you but also might cause problems for them in the future. Also 0 blood type can only receive from the same blood group. Even if there might be volunteers to give their kidney for you in a cross-transplantation (A patient receives B donor’s organ, vice versa) since 0 blood type can be given to anybody, they would probably go with their original donor instead of cross-matching.

SNAFU

Title says all… 🙂

 

 

 

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